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  1. This is such a beautiful, impactful post! Thank you for sharing your experience, the wisdom you’ve gleaned, and advice for loved ones! Our story is different than yours, but we have a child who has a number of diagnoses that have radically changed our family’s lives. It’s always refreshing to feel the solidarity and hope offered by others in similar circumstances! Praying for your sweet girl, and your continued ministry to those on the journey of walking through chronic illness or disability with their children!

  2. This is such an important post! My daughter too has a rare and debilitating illness. It is so heartbreaking at times, especially as she tries to navigate college in her suffering. I LOVE that you put such a beautiful perspective to God’s hand at work, even, and especially perhaps, in the midst. Bless you and your family

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